Transplant/Transplantation

Research Guide to Transplant Statistics

Table of Contents
1. Introduction
2. Sources of Information
2.1. Books
2.2. Journals
2.3. Internet
2.4 Other data sources

1. Introduction

The purpose of this guide is to assist faculty, students, and staff of the University of Chicago find organ transplant statistics. This guide is not meant to be exhaustive but to highlight key resources for locating information on this topic.

2. Sources of Information

2.1 Book Resources

For electronic access to books, try searching the MD Consult database. You can search within an individual textbook, or run a search across >35 textbooks simultaneously for your topic.

Use the Library catalog to locate relevant print and electronic books in the University Library.

Try to identify general texts on your topic and you should be able to find the data you need. Excellent data is buried within textbooks; just because a textbook has not been labeled in the catalog as a statistical resource does not mean that important numerical data is not included within the work. You will need to browse textbook and textbook chapters for tables and graphs on your topic in order to retrieve desired information.

Subject headings in the catalog often do not include terms like statistics unless the book only reports summary data, like in a survey. Instead, browse or search the catalog using broad and narrow subject terms related to diabetes. Catalog tip: use the "*" wildcard to search for variations of your root term. For example child* to search for child or children or children's. You can then combine these subject terms with the type of data you are interested in. For example transplant* and stat*.

Bone Transplantation
Heart -- Transplantation
Kidney Transplantation
Liver Transplantation
Pancreas Transplantation
Skin Transplantation
Transplantation
Transplantation, Homologous
Transplantation (Physiology)
Transplantation immunology
Transplantation of organs, tissues, etc.

Title	Author	Date	Collection	Call#
Neural transplantation in neurodegenerative disease : current status and new directions ; Novartis Foundation symposium 231	[editors: Derek J. Chadwick and Jamie A. Goode].	2000	Crerar Library Bookstacks	R850.A1C5 v.231
Organ procurement and transplantation : assessing current policies and the potential impact of the DHHS final rule	Institute of Medicine (U.S.).	1999	Crerar Library Bookstacks	RD129.5 .I57 1999
Kidney transplant rejection : diagnosis and treatment	Racusen, Lorraine C., 1948-	1998	Crerar Library Bookstacks	RD575 .K5 1998
Organ procurement and preservation for transplantation	Toledo-Pereyra, Luis H.	1997	Crerar Library Bookstacks	RD129 .O733 1997
Pediatric cardiopulmonary transplantation	Franco, Kenneth L.	1997	Crerar Library Bookstacks	RD598.35.T7 P43 1997
Solid organ transplant rejection : mechanisms, pathology, and diagnosis	Solez, Kim, 1946-	1996	Crerar Library Bookstacks	QR188.8.S660 1996
The transplantation and replacement of thoracic organs : the present status of biological and mechanical replacement of the heart and lungs /	Cooper, D. K. C. (David K. C.), 1939-	1996	Crerar Library Bookstacks	RD598.35.T7 T73 1996
Atlas of organ transplantation /	Starzl, Thomas E. (Thomas Earl), 1926-	1992	Crerar Library Bookstacks, Oversize	f RD120.7.A850 1992
1991 Report of center-specific graft & patient survival rates.	United States. Bureau of Health Resources Development	1992	Crerar Library Bookstacks	RD120.63.U6A13 1992
Graft-vs.-host disease /	Ferrara, James L. M., 1952-	1997	Crerar Library Bookstacks	RD123.5.G730 1997
US kidney transplant fact book; information from ACS/NIH registry, 1972.	National Institute of Allergy and Infectious Diseases (US).	1972	Crerar Library Bookstacks	RD575.U58

2.2 Journals

MEDLINE
There are two versions of the the Medline database available.
Medline on OVID and PubMed.

MEDLINE is the National Library of Medicine's premier database covering the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and the preclinical sciences. MEDLINE contains bibliographic citations and abstracts from more than 4,000 biomedical journals. The file contains over 11 million citations dating back to 1966.

The Print version of this database is known as Index Medicus. Print volumes from 1879-present are available in the Crerar Library Reference Collection at Z6660.I4.

CINAHL
Covers nearly nursing, allied health, biomedical and consumer health journals, publications of the American Nursing Association, and the National League for Nursing. This is the electronic version of the Cumulative Index of Nursing and Allied Health.

Print volumes from 1956-1998 are available in the Crerar Library Reference Collection at Z6675.N7C931.

2.3 Internet Resources

Sites were selected based upon the authority and/or reputation of the issuing body in addition to the quality and organization of the website. Federal organizations, medical associations, and private organizations are included.

Agency/Organization	Statistics available
Division of Transplantation, Health Resources and Services Administration (HRSA) Manages the Organ Procurement and Transplantation Network (OPTN), the Scientific Registry of Transplant Recipients (SRTR), and the National Marrow Donor Program (NMDP) contracts.	US Facts About Transplantation
National Marrow Donor Program A non-profit organization based in Minneapolis, Minn., the NMDP facilitates unrelated marrow and blood stem cell transplants for patients with life-threatening diseases who do not have matching donors in their families.	Archived Facts and Figures Disease Outcome Data Diseases Treatable By Stem Cell Transplantation (see individual disesease for information) General Facts & Figures African American Facts & Figures American Indian/Alaska Native Facts & Figures Asian & Pacific Islander Facts & Figures Hispanic Facts & Figures Minority Facts & Figures
OrganDonor.gov This site was created by the Division of Transplantation, Office of Special Programs, Health Resources and Services Administration.	Interested in data from specific states or regions? Try the Organ Procurement Organizations (OPO's) section of this site for individual listings. OPOs evaluate potential donors, discuss donation with family members, and arrange for the surgical removal of donated organs. OPOs also are responsible for preserving organs and arranging for their distribution according to national organ sharing policies. Currently 59 organ procurement organizations are operating throughout the U.S. and Puerto Rico.
Organ Procurement and Transplant Network (OPTN) Maintained by by the United Network for Organ Sharing (UNOS) under contract with the US Department of Health and Human Services (HHS) and the Health Resources and Services Administration (HRSA)	Scientific Data Request Data: If you have reviewed the information on this website and are still unable to find what you need, Use our online form to request specific OPTN data. Most requests take 3 weeks and there may be a fee.
Scientific Registry of Transplant Recipients (SRTR) SRTR supports the ongoing evaluation of the scientific and clinical status of solid organ transplantation in the United States. With oversight and funding from the Health Resources and Services Administration (HRSA), a division of the US Department of Health and Human Services, the SRTR is administered by University Renal Research and Education Association (URREA), a not for profit health research foundation, in collaboration with the University of Michigan.	Center-Specific Reports Organ Procurement Organization (OPO) Reports About Transplants: Fast Facts Research Resources: Data Requests. The SRTR responds to data requests from OPTN committees, government agencies, members of the transplant community, and the general public.
UNOS - United Network for Organ Sharing UNOS administers the national Organ Procurement and Transplantation Network (OPTN) and the US Scientific Registry on Organ Transplantation under contracts with the US Department of Health and Human Services.	Transplant patient data source. Interactive tables showing waiting list, transplant and donor data for the entire US, a UNOS Region, a state or an individual transplant hospital. First select an organ. Then click on the "statistics" tab. 2000 Annual Report of the US Scientific Registry of Transplant Recipients and the Organ Procurement and Transplantation Network 1997 Report of Center Specific Organ Acceptance Rates 1997 Report of Center Specific Graft and Patient Survival Rates US Facts About Transplantation
United States Renal Data System USRDS is a national data system which collects, analyzes, and distributes information about end-stage renal disease (ESRD) in the US.	2001 Annual Data Report (1994 - ) Archive of United States Renal Data System, 1994-1999. The USRDS Coordinating Center was operated under a contract with the University of Michigan from July 1, 1993 until November 15, 1999. Renal Data Extraction and Referencing (RenDER) System (Designed to allow easier access to some of the most frequently requested data.) Cardiovascular Disease in ERSD

2.4 Other data sources

Statistical Universe

Major tool for statistical research. Covers data from U.S. federal and state governments; university research centers, private associations and organizations, and independent research groups; and international and intergovernmental organizations. Records include abstracts, with full text of selected U.S. federal and state publications available from as early as 1995.

Statistical Universe is the online equivalent of the following resources available in print. You will need to consult the print version in order to conduct historical research.

American statistics index (ASI)
Reading Rm, floor 1 Regenstein Z1223.Z7A51 (1973-)
Index to international statistics (IIS)
Reading Rm, floor 1 Regenstein (1983-)
Statistical Abstract of the United States
At multiple locations. Please check holdings. HA202.A2 (1878-)
Statistical reference index (SRI)
Reading Rm, floor 1 Regenstein Z7554.U5S71(1980-)

UpToDate

UpToDate is a practical clinical reference designed to provide instant access to the information you need. It is comprised of thousands of original topic reviews written by a recognized faculty of experts who each address a specific clinical issue and provide detailed recommendations. Due to licensing restrictions, use of this resource is only available onsite at the University of Chicago campus and hospitals.

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